Hello, and thank you for being here. I am Holly—a college student, a rare disease advocate, and a survivor. Living with Gorham-Stout Disease (Vanishing Bone Disease) has reshaped my life, but it has not defined my future.

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Why I’m Asking for Support

Rebuilding a life after major reconstructive surgeries and learning to walk and talk again requires more than just physical strength; it requires resources. As I pursue my education and continue my advocacy, I face ongoing costs for specialized medical care and disability-related expenses.

 

What is an ABLE Account?

I am incredibly grateful that as of 2026, I now qualify for an Arizona ABLE Account. This is a tax-exempt savings account created specifically for people with disabilities to help cover life’s essential costs without losing access to vital services.

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Your contributions to my ABLE account help me pay for:

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Education: Tuition and supplies as I work toward my degree.

Health & Wellness: Reconstructive surgeries, dental care, and therapies.

Independence: Assistive technology and daily living expenses that help me thrive.

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I do not seek pity—I seek the tools to live my best, most impactful life. Whether you share my story, offer a kind word, or donate to my fund, I am deeply moved by your support.