https://globalgenes.org/story/strength-in-struggle/ Thank you Global Genes for sharing my story!

Today, was my last day at the Queen Creek Family Market. Until next year. It is getting too hot for me and I am sensitive to the sun. I...

Happy Sunday! I will be visiting Washington, D.C. to attend this event hosted by EveryLife Foundation for Rare Diseases to advocate for...

After being diagnosed with Gorham-Stout Disease I have done extensive research. My research has led me too many medical reports and terms...

Last night I went to my first support group. I was welcomed, laughed, and cried. It was long overdue to participate with other people at...