Home. Discharged and recovering.
- 22 hours ago
- 1 min read
My jaw is wired shut, but my mission is wide open.
Update: Hospital discharge! My right fibula is now my new jaw. I’m nonverbal and tube-fed for now, but I am filled with more gratitude than ever.
To my "found family": You are my backbone. To the injustice in this world: I am coming for you.
Living with Phantom Bone Disease means I don't just survive—I persevere. I was chosen for this path to be a light for those in the dark. Resilience is my superpower.
#Mandibulectomy #RareDiseaseWarrior #InclusionMatters #BoneGraft #FaithOverFear

Jaw Reconstruction, wired shut.







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