top of page
Search

Home. Discharged and recovering.

  • 22 hours ago
  • 1 min read

My jaw is wired shut, but my mission is wide open.

Update: Hospital discharge! My right fibula is now my new jaw. I’m nonverbal and tube-fed for now, but I am filled with more gratitude than ever.


To my "found family": You are my backbone. To the injustice in this world: I am coming for you.


Living with Phantom Bone Disease means I don't just survive—I persevere. I was chosen for this path to be a light for those in the dark. Resilience is my superpower.


Jaw Reconstruction, wired shut.

Bone graft right fibula not included.
Bone graft right fibula not included.
Right fibula removed to use for creating a new jaw (mandibulectomy).
Right fibula removed to use for creating a new jaw (mandibulectomy).

 
 
 

Comments


© 2023 by Holly's Rare Disease Journey. All rights reserved.

bottom of page