top of page


Home. Discharged and recovering.
My jaw is wired shut, but my mission is wide open. Update: Hospital discharge! My right fibula is now my new jaw. I’m nonverbal and tube-fed for now, but I am filled with more gratitude than ever. To my "found family": You are my backbone. To the injustice in this world: I am coming for you. Living with Phantom Bone Disease means I don't just survive—I persevere. I was chosen for this path to be a light for those in the dark. Resilience is my superpower. # Mandibulectomy #Rar
24 hours ago1 min read
bottom of page

