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Home. Discharged and recovering.
My jaw is wired shut, but my mission is wide open. Update: Hospital discharge! My right fibula is now my new jaw. I’m nonverbal and tube-fed for now, but I am filled with more gratitude than ever. To my "found family": You are my backbone. To the injustice in this world: I am coming for you. Living with Phantom Bone Disease means I don't just survive—I persevere. I was chosen for this path to be a light for those in the dark. Resilience is my superpower. # Mandibulectomy #Rar
Feb 201 min read


Disability Pride
Celebrating 35 years, American's with Disability Act #ADA #DisabilityPride #RareDiseaseWarrior Supporting people with disabilities,...
Jul 26, 20251 min read
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