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Celebrating Our Stripes
Thank you Arizona! For recognizing Rare Disease Day February 28, 2025 We are now the 31st state to have a RDAC-Rare Disease Advisory...
Feb 22, 20251 min read


Love Your Journey!
I'm here to remind you that you are awesome! Whatever you are going through, make the best out of it. Try to be a problem solver and see...
Feb 13, 20251 min read


Get Involved
February 28, 2025 Rare Disease Day Show your support by sharing your pictures on social media #LightUpForRare light up your home,...
Feb 8, 20251 min read
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